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UPWSA 2008 Conference

Session for Medical Providers and Therapists (only)

September 5th, 2008 (Friday)
12:00 p.m.–3:00 p.m.

Health Department, Children With Special Health Care Needs
44 North Mario Capecchi Drive
Salt Lake City
Conference Room A

Lunch will be provided.

Download Flyer (pdf)

Session for Group Home Staff and Interested Parents

September 5th, 2008 (Friday)
3:30 p.m.–5:30 p.m.

Health Department, Children With Special Health Care Needs
44 North Mario Capecchi Drive
Salt Lake City
Conference Room A

Session for Families, Teachers, Friends, etc. (everyone)

September 6th, 2008 (Saturday)
8:00 a.m.–5:00 p.m.

Primary Children's Medical Center
100 N. Medical Drive
Salt Lake City
For a map, click here...
(Map will open in a new window)

Breakfast and lunch will be provided.

Download Flyer (pdf)


We have the rare opportunity of having Dr. Linda M. Gourash and Dr. Janice L. Forster of the Pittsburgh Partnership here in Salt Lake City to conduct a conference for us.

Drs. Gourash and Forster are world-class experts in both the medical treatment and behavioral management of Prader-Willi syndrome. They frequently speak at national and international conferences and are clinical consultants to the PWSA(USA). The Total Food Security and TRAIN (Tool for Reducing Anxiety, Insecurity, and Noncompliance) methods of behavioral management that they developed and teach have helped many people with PWS and their families.

Prior to their current collaboration, they served on staff of the Children’s Institute in Pittsburg, the only inpatient treatment program in the United States for PWS, where they developed many of their methods. They were among the finest, most caring, concrete presenters we heard at the national conference last year. Having them in Utah is an opportunity you will not want to miss!

Who Should Attend?

Everyone! The training will provide an opportunity for parents, caregivers, group home staff, grandparents, aunts and uncles, older siblings, neighbors, phycisians, therapists, and school staff to learn more about the syndrome and how to manage difficult behaviors.

Specific sessions will be held on Friday for medical professionals and group home staff.

For More Information . . .

Email Lisa Thornton at sidlisathornton@aol.com or telephone her at (801)582-0998.

  Because we need to plan for food, please RSVP to Lisa Thornton at (801) 582-0998 or Ellie Saltern at (801) 444-0272 by Friday, August 29, 2008.  

  The costs for the entire conference have been covered. There are no fees. This includes a continental breakfast on Saturday morning, and lunch on Saturday as well. Just come and enjoy!  

  Overnight Accomodations  
  For those who need to stay overnight, the Marriott University Park Hotel is located at 400 South Wakara Way, just a half mile from Primary Children’s Medical Center.

A shuttle is available from the hotel to Primary Children’s Medical Center. Contact the hotel at (801)581-1000 for reservations.