What is PWS?
Prader-Willi syndrome (PWS) is a complex genetic disorder resulting from abnormality on the 15th chromosome. PWS causes low muscle tone, short stature if not treated with growth hormone, cognitive deficits, problem behaviors, and most notable, a chronic feeling of hunger which, when coupled with a metabolism...
What We Do
UPWSA is a 501(c)(3) nonprofit organization providing support to individuals diagnosed with PWS, their families, communities, and care providers. We work in conjunction with the Utah Prader-Willi Syndrome multi-disciplinary medical clinic, which provides medical care for children and adults with PWS...
Make a Donation
Funds donated to UPWSA are used to help provide respite care to parents, sponsor Utah PWS conferences, provide educational materials and adaptive equipment for Utah families, and make available summer stipends for children with PWS to enjoy summer camps and engage with the community around them.
Read These 2023 PWSA National Conference Articles About our Utah Chapter
Written by Christopher Rich
Transformative Tales: Empowering Families Dealing with Prader-Willi Syndrome Through Food Security
Upcoming Events
Thu, Apr 25Law Enforcement & Criminal InvolvementApr 25, 2024, 7:00 PM – 8:00 PMLaw Enforcement & Criminal InvolvementJoin the Utah Prader-Willi syndrome Association for a 2 part virtual training regarding law enforcement encounters for persons with disabling conditions. Join Zoom Meeting https://us02web.zoom.us/j/82684216323?pwd=RjNrbStMR0dvME9raFRXK21UbUpGZz09
Sat, May 04LehiMay 04, 2024, 5:00 PM – 9:00 PMLehi, 3101 W 1950 N, Lehi, UT 84043, USASign your family up for a fun night of games, friends, activities, and fun while you get the night off!
Sat, May 11Olympic ParkMay 11, 2024, 11:00 AM – 2:00 PM MDTOlympic Park, 2650 W Parkside Dr Lehi, UT 84043The purpose of the Prader-Willi Syndrome Fitness Fun-Raiser is to promote awareness, to support children and family members who struggle with this syndrome every day, and to raise funds for the Utah Prader-Willi Syndrome Association (UPWSA).
Tue, Jun 25Birch Creek Golf CourseJun 25, 2024, 8:00 AM – 2:00 PM MDTBirch Creek Golf Course, 550 E 100 N, Smithfield, UT 84335, USACome join us for an event benefitting the Utah Prader-Willi Syndrome Association. The tournament will begin at 8 a.m. with a shotgun start. There will be a raffle, and lunch will be provided. For questions call Alyssa Nielsen (435) 881-9903. Thank-you for your support!
Fri, Aug 30LehiAug 30, 2024, 6:00 PM – Aug 31, 2024, 9:00 PMLehi, City Recreational Facility, 451 E 200 S, Lehi, UT 84043, USAMark your calendars for our annual Utah Prader-Willi syndrome family swim party at the Lehi outdoor pool! We will have dinner and fun first at the adjacent pavilion and playground starting at about 6:00 p.m. and then swimming and swim games from 7-9 p.m.