From October 1st through the 15th, the Utah Prader-Willi Syndrome Association wishes to focus on the joy we experience even when dealing with the challenges of this syndrome. We wish to share that joy with you as well. We are not ignoring these especially hard times but are hoping to change the focus of our minds and hearts for these two weeks. We choose to find Joy in the Journey and will share that with you online over these 15 days!
How You Can Help
Our Utah Prader-Willi Syndrome Association families have been hit especially hard with COVID-19. Many families have suffered with the virus and many are struggling with caring for their child with the syndrome with no outside relief. Our organization has stepped up to help provide such items as ipads, bikes, computers, and other supplies to help families through this hard time. Please help support our organization as we assist families in these hard times by either making a
donation or participating in our silent auction.
The Utah Prader-Willi Syndrome Association is a non-profit 501(c)(3) corporation.
Federal tax ID # 87-0468350.
No donations are used for administrative costs.
UPWSA Mission Statement
The mission of the Utah Prader-Willi Syndrome Association is to provide families and professionals with a network of support, resources and information, to promote awareness of the syndrome and raise funds that will directly benefit Utahn"s with PWS. In addition, the association facilitates opportunities to congregate pro-active individuals who can pool talents, resources, ingenuity and vision to produce more options, increase quality of life, and create a brighter future for individuals with PWS.
What is Prader-Willi Syndrome?
Prader-Willi Syndrome (PWS) is a two stage, complex genetic disorder affecting the hypothalamus of the brain, causing a chronic feeling of hunger that can lead to excessive eating and morbid obesity. Prader-Willi Syndrome is a lifelong condition complicated by developmental delays, low muscle tone, mental retardation, and behavioral issues.
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